兰州大学循证社会科学交叉创新实验室 Innovation Laboratory of Evidence-based Social Sciences,Lanzhou University

Methods for retrospectively improving race/ethnicity data quality: a scoping review.

2023-12-20


     
     Improving race and ethnicity (hereafter, race/ethnicity) data quality is imperative to ensure underserved populations are represented in data sets used to identify health disparities and inform health care policy. We performed a scoping review of methods that retrospectively improve race/ethnicity classification in secondary data sets. Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines, searches were conducted in the MEDLINE, Embase, and Web of Science Core Collection databases in July 2022. A total of 2 441 abstracts were dually screened, 453 full-text articles were reviewed, and 120 articles were included. Study characteristics were extracted and described in a narrative analysis. Six main method types for improving race/ethnicity data were identified: expert review (n = 9; 8%), name lists (n = 27, 23%), name algorithms (n = 55, 46%), machine learning (n = 14, 12%), data linkage (n = 9, 8%), and other (n = 6, 5%). The main racial/ethnic groups targeted for classification were Asian (n = 56, 47%) and White (n = 51, 43%). Some form of validation evaluation was included in 86 articles (72%). We discuss the strengths and limitations of different method types and potential harms of identified methods. Innovative methods are needed to better identify racial/ethnic subgroups and further validation studies. Accurately collecting and reporting disaggregated data by race/ethnicity are critical to address the systematic missingness of relevant demographic data that can erroneously guide policymaking and hinder the effectiveness of health care practices and intervention.
   

研究类型
系统评价再评价
人群
混合人群
国家
United States
关键词
algorithms; classification; data analysis; ethnicity; health equity; machine learning; racial groups; systemic racism.
来源期刊
Epidemiol Rev
发布日期
2023-12-20
全文链接
https://pubmed.ncbi.nlm.nih.gov/37045807/
相关网址
https://pubmed.ncbi.nlm.nih.gov/37045807/
DOI
10.1093/epirev/mxad002
主题
弱势人群卫生 信息资源
作者
Sonia Persaud Timothy Roberts Emily Huang Kiran Y Kui Simona C Kwon Lauren Fu Rienna G Russo Lan N Đoàn Matthew K Chin Stella S Yi